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Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

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Tuesday, September 23, 2008

Global Research Institute for Down syndrome!!!

posted by: Kim Christiansen of 9News in Colorado.

"DENVER - When Sophia entered their lives, their mission became clear. They would devote their time and energy to creating the world's leading research and care center for people with Down Syndrome.

One family's mission is coming to fruition in Colorado.

The Anna and John J. Sie foundation is committing $34 million to establish the new Linda Crnic Institute for Down Syndrome at the University of Colorado Denver's Anschutz Medical Campus.

The institute will have the single research focus of eradicating the ill effects associated with Down Syndrome and will be the first to comprehensively address basic research, clinical research and clinical care all under one umbrella.

After years of due diligence and in the face of steady decreases in National Institutes of Health (NIH) funding for Down Syndrome, the Anna and John J. Sie Foundation decided that the best hope for real break-through and advocacy was a combined force made up of the University of Colorado Denver, the University of Colorado at Boulder, and The Children's Hospital in Aurora. Each organization has committed space, personnel and overhead to the Institute and it will be managed out of the Anschutz Medical Campus.

Anna and John J. Sie have high hopes for their granddaughter Sophia, born five years ago with Down Syndrome. Their family is determined to significantly enhance the lives of all people with Down Syndrome.

Chancellor M. Roy Wilson stated, "It has been a pleasure working with the Sie family in establishing this premier Institute here at the University of Colorado Denver. They bring a unique combination of philanthropy, family focus and business acumen to the table. The first $1 million in research grants that the Sie's supported in 2006 has already started to bear fruit. We are confident that insights that might be unimaginable today will soon be within our grasp due to the work of this Institute."

The Institute will aggressively recruit the best and brightest talent worldwide – both inside and outside the field of Down Syndrome and is expected to grow into a $150 million organization within ten years with staff estimated at more than 160.

World-renowned neurologist, William C. Mobley, MD, PhD, has signed on as the Executive Director of the Institute and has been a life-long advocate for Down syndrome related research."
To read the rest of the article please click here - Global Institute dedicated to Down Syndrome

1 comment:

blessingsandglory said...

Wow - this is exciting news. Thanks for sharing! Oh - and I love Nathan's new shoes!

-Libby