Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

Thank you for keeping up-to-date with Nathan. We hope you visit often and enjoy experiencing our son's journey as much as we do. Please feel free to leave comments.

We love hearing from everyone!!!!

Wednesday, July 16, 2008

What are these?!

These are the latest speech therapy accessories for Nathan!!! Most of them are simply for chewing - they're meant to strengthen his mouth muscles. The white tooth brush looking tool is called a Nuk brush and the first time we gave it to Nathan he was not a happy camper - it was the texture and it's kind of hard. I tried again this morning after I dipped it in his pears! That worked!!!

Sunday, July 13, 2008


Since becoming a Board Member of the Capital Region Down Syndrome Aim High Resource Center I've learned a great deal. What I'd like to share with you is the proper language guidelines for persons with Down syndrome.

First, the correct name is Down syndrome. Capital "D" lowercase "s" and no apostrophe. There is NO such thing as a person with "Downs" -- it's a very common mistake.

Second, words can and do create barriers. Never describe Nathan as a "Down syndrome child" - he is a "child with Down syndrome." It could be equated to describing a person this way - that's my cancerous grandmother - you wouldn't say that would you? No, of course not!! You'd use proper English and say my grandmother has cancer. Why? Because it's not WHO she is - just a part of her.

Lastly, look at Nathan as a person, an individual. Each person with or without a disability as his/her own strengths, capabilities, and talents. Don't assume because Nathan has Down syndrome that he will be just like other children with Down syndrome because that simply is not the case! Nathan is Nathan - he's like any other child - unique in his own right.

What a learning process this has been!!!! I hope you learn a lot too!

The Terry Family