Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

Thank you for keeping up-to-date with Nathan. We hope you visit often and enjoy experiencing our son's journey as much as we do. Please feel free to leave comments.

We love hearing from everyone!!!!

Thursday, November 27, 2008

Thankful for Down syndrome

Since the first Thanksgiving celebration in 1621, today is a day when we reflect on the past year and celebrate the abundant blessings given to us from God. A day when friends and family gather together to enjoy each others company, consume oodles of delicious food, and kick off the upcoming Christmas season. For our family, it’s also a day to give back - we’re getting ready to head down to the annual Equinox dinner to deliver food to those in need.

Each year, my Aunt gathers our family’s blessings and places them in a scrap book. This year I’d like to share our blessing with you.

I am thankful for Down syndrome. This year, my husband and I learned that some of life’s greatest blessings don’t come wrapped in the nice pretty packages that we hoped they would. Our package was lined with gold. So often a blessing is what we make it. Like Nathan. I can choose to see his syndrome as a blessing or a hindrance. It’s a blessing. His smile, little giggle, and sweet personality light up my days and I couldn’t imaging life any other way.

I am thankful to God because Nathan will be able to talk with us, he’ll run around, play sports, go to school and college, he’ll hold a job, and live a full life. It could have been different.

I am also thankful that our family has been blessed with opportunities that give me the ability to stay home with Nathan.

Happy Thanksgiving. May your day be filled with the reflection and realization of the many blessings you have in your life – big and small.

Tuesday, November 25, 2008

The Right Decision Is Not Always An Easy One To Make

Just 12 short years ago, an ambitious college graduate got her first big job with the New York State Senate!!!! I remember that day like it was yesterday.

For the past twelve years I’ve had the privilege to work for and with some of the most remarkable people. Few can actually say that they have a deep respect and admiration for those that they've worked under but I can. These men (yes all men) have been great influences on the person and professional I’ve become. At times, they saw potential in me that I didn’t know existed and it inspired me. For that I am forever grateful.

For twelve years, I’ve had the great honor and privilege to do a job that only a few will have the opportunity to perform. Very few professions afford you the opportunity and platform to see injustice in the world and change it. I was afforded that opportunity and I will cherish it.

I gave my notice today at the Senate.

In so many ways I feel like I’m morning the loss of a loved one and in some ways I am. The Senate is a part of me – so I’m morning the loss of myself. And although, I've made this decision for all the right reasons it was still difficult. Nathan needs his mother and I wouldn't have it any other way.

I have been blessed beyond measure for the past 12 years and look forward to the days ahead with my son. God may have closed this door but he opened another. That’s another post for another time.

Monday, November 24, 2008

Inch Worm

Here it is - a little video of our inch worm. He gets better every day - this is from a few days ago (his second official day on the move). It's the funniest thing - he uses both arms, sticks his butt in the air and crosses his feet when he moves. I have no idea how he learned this style of crawling but it works for him and it's a start! We'll take it.

I ended the video with a little victory dance - Nathan style!!!

Elton John or Ray Charles?

Yesterday, I sat Nathan down to play at his piano and he did something he's never done before - play the piano and dance!! I was only able to capture a few seconds before the dog barked and distracted him. And, of course this video was taken with my digital camera so the quality is poor.

On another note, I was able to get real video of our little inch worm!!! It's so darn cute. I don't know how he manged to learn to get around this way but I don't care! He is and that's all that matters.