Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

Thank you for keeping up-to-date with Nathan. We hope you visit often and enjoy experiencing our son's journey as much as we do. Please feel free to leave comments.

We love hearing from everyone!!!!

Friday, February 27, 2009

Odds & Ends

After a very long process, Nathan has finally received his Medicaid waiver. I'm not sure if you recall but when Nathan was born we were told he HAD to have Medicaid and I was livid about it. I told the social worker at the hospital "Nathan had private insurance - he'd be fine." Why does he have to be on Medicaid! Well, that was the - just found out your son has a disability protective mommy coming out - not the level headed mommy. I thought Nathan would get inadequate care and I simply wasn't going to have it.

Nathan doesn't "have to" have anything. There are several reasons that children with Down syndrome and other special needs apply for a waiver to be in the program. First, there is always a possibility that our private insurance company won't pay for a procedure or device Nathan may need - Medcaid will. Secondly, the program provides Nathan with opportunities we would otherwise have to pay out-of-pocket for. So, after some investigation and lots of paperwork - Nathan now is dually covered by our private insurance and the State. And, if I understand this correctly, we will no longer be responsible for any medical co-payments, which is a nice little bonus - they add up.

On another note, Nathan is standing up on every thing these days! I couldn't be happier. He stands in his crib, on his toys and today, he even pulled himself up onto the bathtub! We are one step closer to walking! Something we've been practicing a lot these days.

Nathan's new speech therapist begins on Monday - keep your fingers crossed!

Have a nice weekend.

Thursday, February 26, 2009

Dancing Feet

Nathan had dinner with his little cousin Lily the other night and he decided it was time to teach her some of his moves! It won't be long before the two of them are dancing around the house!

Wednesday, February 25, 2009

Will You Join Us?

On June 14th, my sister will be participating in a life changing event in Lake Placid, to help save lives. We're so proud of her! Please considering helping her raise the money she needs to participate. You may do so by clicking on the post title. Here is her inspiration:

I was inspired to run by one of my dearest friends who is also participating, Donna Mannarino. Donna's sister, Dinay Leichleiter (28 years of age), is my Honored Hero. Dinay was diagnosed in April 2008, when she was pregnant with her first child a son named Keonte. Dinay fought this battle with everything she had. A few days before she passed away, I was fortunate enough to spend some time with her and she was sharing with me all the things she wanted to do when she was released from the hospital. Dinay never gave up. Her courage and strength was amazing. On January 21, 2009 Dinay left behind a beautiful little boy and a family who are still trying to get through each day.

I am also running in memory of Meghan Daly and Sarah Voss- Carter, both of them fought courageously to beat these cancers. Both were taken too soon.

I have committed to running this race and raising at least $1500 for research to find a cure for leukemia, lymphoma, Hodgkin's disease and Myeloma - blood cancers that affect an estimated 895,000 people in the United States.

When I think about 13.1 miles, I can't help but to think about the tremendous physical challenge I will soon face, but it pales in comparison to the battle that Dinay, Meghan, Sarah and others who have fought. They are all the motivation I need to get through every one of those 13.1 miles and every day of training.

Will you join me? Will you help me make a difference? Will you consider making a donation to LLS of $25, $50, $100 or even $250? Whatever your ability to give, please know that I am so grateful for your donation and support. Please take a moment right now to send your donation along in the enclosed envelope I hope to reach my goal by April 15th!

If you'd like me to run in honor of, or in memory of, someone you love - please send me their name and they'll be added to my shirt for the race.

Thank you and let's hope they find a cure soon
Kathy (Kate) Smith

Monday, February 23, 2009

Sit & Spin or Stand & Boogie!

Nathan has two favorite toys - his ball tent and his sit and spin. As you'll see from this little video, Nathan doesn't get the sit and spin part of this toy. In fact, he prefers to stand - put his head on the steering wheel and boogie to the bad music. It's really quite cute. I love watching him do this. Enjoy.

Home Alone

This was mommy and Nathan's first weekend home alone without daddy! I wasn't sure how I'd do. The thing is, our family has an emergency plan that is executed if anything were to go wrong. If the fire or burglar alarm were to go off in the middle of the night - we have our roles and we know just what to do. But, how was I going to execute the plan alone? How was I going to get the baby, the dog, deal with the alarm and heaven forbid someone in the house?

At first, I thought - no problem - I'll just take all the necessary "supplies" with me and sleep in Nathan's room. But that's not what happened. Just before bed each night I read Nathan a children's bible story - we just open the book and whatever page I open to - we read. That night, we read about baby Moses being placed in the basket and set in the high grass of the river. The story talked about how his sister watched over him to make sure he was safe. The moral of the lesson was: not to worry because God will keep you safe!

That story wasn't for Nathan it was for His other child - me! In the end, Nathan slept in his room and I in mine. Everything was fine. We were kept safe. Thank you God!