Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

Thank you for keeping up-to-date with Nathan. We hope you visit often and enjoy experiencing our son's journey as much as we do. Please feel free to leave comments.

We love hearing from everyone!!!!

Saturday, December 12, 2009

Spit Happens! Will it ever stop? We've Found Something That Helps!

If you have a child with low muscle tone, including Down syndrome, than you know spitting up is a normal occurrence in your daily routine. Nathan is going to be two in January and I recently began wondering, "when is this going to stop?" Plus, this can't be good for his little body to be spitting up his juice and water every day (not all day).

I decided to speak to his pediatrician about this and if there might be some underlying health condition we were missing.

I explained to the doctor that Nathan doesn't throw up his food, just his water and clear juices (if he has too much). He said that because it appears Nathan is only spitting up the light clear liquids that there isn't too much to be worried about. Although, for our peace of mind he gave us a script to have a swallowing study done at the local Children's Hospital, but advised us to consult with our speech therapist first. Speech therapists are involved in the evaluation of these studies. Our speech therapist has seen this before and has gone with other families to have this test done and the diagnosis was ~ they'll grow out of it.

So what did we do? We're not taking Nathan for any invasive and unnecessary tests. We've taken another route ~ switched his morning juice to Yoga Italian juices. They are expensive but because they're so thick he doesn't throw them up! These juices are pure nectar's shipped in from Italy. You can pick them up at your local Italian deli and they are super yummy! They have lots of different flavors ~ pear, peach and apricot.
Not having Nathan spitting up every morning is a nice change for both of us. I won't buy the regular, organic or not, juices. They're also pricey and if they come back up, a total waste of money. Not to mention, how Nathan must feel having this happen to him. I wouldn't want to be sick every morning from drinking juice or water.

Nathan still has issues when he drinks too much water. We just try to monitor his intake and balance his need for fluids and the amount he can really take at one time. I also give him sparkling water. Life certainly is a great balancing act (thanks Dr. Seuss).

Wednesday, December 9, 2009

Picture of the Week!

Doesn't he look so happy to be wearing his beautiful white scarf that his Nonnie made him? Such a boy!!

Monday, December 7, 2009

The Hearing Test that Never Was and Other Updates

Nathan was scheduled about a month ago to get his annual hearing test and we had to cancel the appointment due to an ear infection (first ever!) and rescheduled for last week. The facility that where Nathan gets his test is about 35 minutes from our home and when you arrive you're required to check-in in another room, which is quite far from the actually office.

Because of this process we ended up being about 15 minutes late for our scheduled appointment. The receptionist checked us in and about 5 minutes later came back and informed us that because we were late we'd need to reschedule again! WHAT? I kindly informed her that that wouldn't be necessary because we wouldn't be returning after driving that distance and being delayed at their check~in counter. I'm going to call Nathan's ENT and see whether or not his office does these basic tests. I'm not overly concerned that we're a little behind ~ Nathan's not exhibiting any hearing loss issues.

In other news, Nathan received his second H1N1 booster on Friday, and as with most vaccines, he's running a fever, has a runny nose and some chest congestion. If we don't see any relief by tomorrow, I'll call the doctor.

This picture is of Nathan and his cousin while decorating our Christmas Tree last week.

Nathan is signing a lot of new words and yesterday he spontaneously signed, "I love you!" I was so excited!! He doesn't have the fine motor skills to bend his two fingers but he tries and it's adorable!!! I attempted to take some video last night but Nathan wasn't interested in performing. Nathan also said "popper" today!!! Which is his way of saying Chopper for our dog!!! He's going to be talking up a storm shortly, I can just tell.

Lastly, the Terry Family just purchased property to build our new house!!! We're over the top excited and are planning to begin construction in the Spring. It's going to take a few years because we're going to do most of the work ourselves. We're planning a beautiful Mediterranean style house with floor to ceiling windows and Roman columns! What's really interesting about this process is planning for the future ~ not just ours but Nathan's too and anticipating his needs as an adult is like sailing in unchartered waters. It's one thing to build a room for a child up until they're 18 or 20 but being conscious of the needs of our adult son is another story. It's important to us that if Nathan chooses to live with us, he has the little luxuries that we've come to cherish ~ walk in closet, his own bathroom, and a large bedroom. The design is now in the hands of our architech ~ we'll see what he comes up with. I'll be sure to keep you all posted on our progress.
It's time to give Nathan a bath ~ Have a great day everyone!