Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

Thank you for keeping up-to-date with Nathan. We hope you visit often and enjoy experiencing our son's journey as much as we do. Please feel free to leave comments.

We love hearing from everyone!!!!

Saturday, June 4, 2011

What Has Been The Hardest Part?

The day before Mother's Day, I found myself in the company of a woman that I hadn't seen since I was pregnant for Nathan, which was actually the first and only time we'd met.  She recalled that I worked in the Senate and that I was pregnant, so she began asking typical questions about work and motherhood.  I explained to her that our son was born with Down syndrome and when he was eight months old, we were forced to make a life-altering decision ~ resign from my job and take care of Nathan or put him into daycare.   It wasn't much of a decision.  We knew what the right thing to do was - it just wasn't an easy leap to make.  Anyway, after going through the story, she asked me a question I had never been asked before, "what has been the hardest part?"  Huh? The hardest part?  I never thought about it.

Within seconds, I was thinking all sorts of things: is it the juggling of 5 different therapists schedules injunction with our own family schedule and my school schedule?  Is it Nathan's cognitive and developmental delays?  Is it the doctors appointments and health concerns?  Is it the continual grieving over Nathan's syndrome and worrying about what awaits us in life?  Is it dealing with an ignorant society?  Is it that Nathan has to be watched every second unless he's in his playroom?  Is it staring at the same walls day in and day out? What is it?  It's none of these.

These questions all represent facets of my life and present their challenges, but none have been the hardest part of being a mother of a child with Down syndrome.  The hardest part has been purely personal. It has nothing to do with being Nathan's mom and giving him the support he needs.  I would do anything for my son (just like lots of moms) and my sacrifices have proved that. I challenge you to find one mother that hasn't faced hurtles and challenges with raising their children.  They don't exist.   I could sit here and delve into what I feel has been the "hardest part," but it wouldn't change the facts or serve any positive purpose.  So, I'm going to leave it where it belongs ~ in the past. 

On another related note, a few months ago, I received a really nice message from a friend that I've been meaning to share.  It read, "I am one of your blog followers and I am so completely amazed by you and Danny. Your son has no idea how lucky he is! Your involvement in his life and development and education is truly a blessing! I'm so impressed by you! I've thoroughly enjoyed watching Nathan grow! The picture of him at sesame street was so priceless and completely melted my heart! Be so very proud of yourselves for being awesome parents and infinite advocate for him! You make us moms proud to be parents! Congratulations!"

My reply: "It's so rare that a mom gets such an out-of-the-blue message like this. thank you so much!!!! I can't tell you how blessed I am to be Nathan's mom. I was just thinking today how imperfect we all are and how loved we are by God in spite of it. I love my son and his disability means little to me. We're a move-forward kind of family.  Thank you for reading his blog. It means a lot!"   

My Mother's Day gifts from Nathan
The greatest part about being Nathan's mother is the love we share and fun we have everyday.  I couldn't have been more blessed and that's all that matters.

1 comment:

Mairead Elizabeth Hickok said...

Your positive spirit and approach to all things in Nathan's life is so admirable. When I read the question the woman asked you, my mind immediately jumped to thinking about a thousand things that have been 'hard,' but then your response snapped me back into thinking about how there have been so many amazing parts. Your post was so well written and made so much sense to me. And, that anonymous poster is right- you and Danny are amazing parents and Nathan is so lucky to have you!