Nathan is Hebrew and means "gift from God" - we couldn't have been more blessed than to have been chosen as his parents!

Thank you for keeping up-to-date with Nathan. We hope you visit often and enjoy experiencing our son's journey as much as we do. Please feel free to leave comments.

We love hearing from everyone!!!!

Saturday, June 4, 2011

What Has Been The Hardest Part?

The day before Mother's Day, I found myself in the company of a woman that I hadn't seen since I was pregnant for Nathan, which was actually the first and only time we'd met.  She recalled that I worked in the Senate and that I was pregnant, so she began asking typical questions about work and motherhood.  I explained to her that our son was born with Down syndrome and when he was eight months old, we were forced to make a life-altering decision ~ resign from my job and take care of Nathan or put him into daycare.   It wasn't much of a decision.  We knew what the right thing to do was - it just wasn't an easy leap to make.  Anyway, after going through the story, she asked me a question I had never been asked before, "what has been the hardest part?"  Huh? The hardest part?  I never thought about it.

Within seconds, I was thinking all sorts of things: is it the juggling of 5 different therapists schedules injunction with our own family schedule and my school schedule?  Is it Nathan's cognitive and developmental delays?  Is it the doctors appointments and health concerns?  Is it the continual grieving over Nathan's syndrome and worrying about what awaits us in life?  Is it dealing with an ignorant society?  Is it that Nathan has to be watched every second unless he's in his playroom?  Is it staring at the same walls day in and day out? What is it?  It's none of these.

These questions all represent facets of my life and present their challenges, but none have been the hardest part of being a mother of a child with Down syndrome.  The hardest part has been purely personal. It has nothing to do with being Nathan's mom and giving him the support he needs.  I would do anything for my son (just like lots of moms) and my sacrifices have proved that. I challenge you to find one mother that hasn't faced hurtles and challenges with raising their children.  They don't exist.   I could sit here and delve into what I feel has been the "hardest part," but it wouldn't change the facts or serve any positive purpose.  So, I'm going to leave it where it belongs ~ in the past. 

On another related note, a few months ago, I received a really nice message from a friend that I've been meaning to share.  It read, "I am one of your blog followers and I am so completely amazed by you and Danny. Your son has no idea how lucky he is! Your involvement in his life and development and education is truly a blessing! I'm so impressed by you! I've thoroughly enjoyed watching Nathan grow! The picture of him at sesame street was so priceless and completely melted my heart! Be so very proud of yourselves for being awesome parents and infinite advocate for him! You make us moms proud to be parents! Congratulations!"

My reply: "It's so rare that a mom gets such an out-of-the-blue message like this. thank you so much!!!! I can't tell you how blessed I am to be Nathan's mom. I was just thinking today how imperfect we all are and how loved we are by God in spite of it. I love my son and his disability means little to me. We're a move-forward kind of family.  Thank you for reading his blog. It means a lot!"   

My Mother's Day gifts from Nathan
The greatest part about being Nathan's mother is the love we share and fun we have everyday.  I couldn't have been more blessed and that's all that matters.

Tuesday, May 31, 2011

The Mother of All Video Posts!

Summer has arrived in New York!! Now, let's hope it sticks around for the next 4 months without too much rain. I recently upgraded my phone to the new 4G iPhone, which means I have all sorts of new features; including a video camera and the ability to take pictures in HD! So, I've been putting it to good use. The only drawback, if there is one, is that the video doesn't fill the screen unless I turn the phone sideways.

Here are a few videos from hippotherapy. Nathan's doing very well - his stamina on the horse is improving, he's sitting up straighter, and able to do more, like play basketball from the saddle!

A few weeks ago, Nathan and I went to the Greek Festival and he was terrified of the Gladiators! hehe.

Summer means spending lots of time at the Lake and enjoying the company of friends and family.
Last week, Nathan's cousin Lily came up for a visit and it turned out to be more than just fun. As you may recall, Nathan has never like the swing - ever. Well, that all ended the moment he saw his cousin get on and go for a ride. Now, he likes both the tire swing and toddler/baby swing. Super cool!!
 Last year, Nathan also didn't have the motor plan to climb up the ladder on the jungle gym and go down the slide without the support of an adult. I remember how heartbreaking it was to watch him struggle with what other toddlers found to be "child's play." This season, he's doing it by himself! I tried to get a video of him climbing, but as you'll see, it didn't quite work out that well. :-)
The commencement of summer, also means the start of a few of Nathan's favorite things ~ dance parties and swimming! He does a lot more running than dancing and a lot more jumping than swimming, but it's all good!