Within seconds, I was thinking all sorts of things: is it the juggling of 5 different therapists schedules injunction with our own family schedule and my school schedule? Is it Nathan's cognitive and developmental delays? Is it the doctors appointments and health concerns? Is it the continual grieving over Nathan's syndrome and worrying about what awaits us in life? Is it dealing with an ignorant society? Is it that Nathan has to be watched every second unless he's in his playroom? Is it staring at the same walls day in and day out? What is it? It's none of these.
These questions all represent facets of my life and present their challenges, but none have been the hardest part of being a mother of a child with Down syndrome. The hardest part has been purely personal. It has nothing to do with being Nathan's mom and giving him the support he needs. I would do anything for my son (just like lots of moms) and my sacrifices have proved that. I challenge you to find one mother that hasn't faced hurtles and challenges with raising their children. They don't exist. I could sit here and delve into what I feel has been the "hardest part," but it wouldn't change the facts or serve any positive purpose. So, I'm going to leave it where it belongs ~ in the past.
On another related note, a few months ago, I received a really nice message from a friend that I've been meaning to share. It read, "I am one of your blog followers and I am so completely amazed by you and Danny. Your son has no idea how lucky he is! Your involvement in his life and development and education is truly a blessing! I'm so impressed by you! I've thoroughly enjoyed watching Nathan grow! The picture of him at sesame street was so priceless and completely melted my heart! Be so very proud of yourselves for being awesome parents and infinite advocate for him! You make us moms proud to be parents! Congratulations!"
My reply: "It's so rare that a mom gets such an out-of-the-blue message like this. thank you so much!!!! I can't tell you how blessed I am to be Nathan's mom. I was just thinking today how imperfect we all are and how loved we are by God in spite of it. I love my son and his disability means little to me. We're a move-forward kind of family. Thank you for reading his blog. It means a lot!"
|My Mother's Day gifts from Nathan|